Senate Bill No. 197–Senators Wiener, Rawson, Townsend,
Titus, Mathews, Care, Porter and Schneider
February 16, 1999
____________
Referred to Committee on Human Resources and Facilities
SUMMARY—Establishes certain programs relating to prevention and treatment of fetal alcohol syndrome. (BDR 40-134)
FISCAL NOTE: Effect on Local Government: Yes.
Effect on the State or on Industrial Insurance: Yes.
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EXPLANATION – Matter in
bolded italics is new; matter between brackets
Whereas, The occurrence of birth defects, mental retardation, attention
deficit disorder and other genetic disorders is significantly increased in the
children of women who consume alcohol during pregnancy; and
Whereas, The incidence of fetal alcohol syndrome in this state is 2 1/2
times greater than the incidence of Down’s syndrome; and
Whereas, The residents of this state are becoming increasingly
concerned about the effects relating to fetal alcohol syndrome and its
associated costs to mothers, children and society as a whole; and
Whereas, In addition to the medical problems associated with fetal
alcohol syndrome there are tremendous social costs, including increased
expenditures for social services, education, the system of juvenile justice,
law enforcement agencies and the prison system; and
Whereas, There has been a significant national increase in the use of
alcohol by pregnant women in the past decade; and
Whereas, The State of Nevada has the highest percentage in the nation
of women who report chronic alcohol abuse, the second highest percentage
in the nation of women who report binge drinking and the highest rate in
the nation of teenage pregnancy; and
Whereas, Fetal alcohol syndrome is a lifelong condition; and
Whereas, Fetal alcohol syndrome frequently occurs in more than one
child born to the same mother and is more likely to occur in the children of
a woman who has suffered from fetal alcohol syndrome; and
Whereas, Fetal alcohol syndrome is entirely preventable and, even if a
woman has consumed alcohol during her pregnancy, preventing further
consumption of alcohol may reduce the harmful consequences to her child;
and
Whereas, Because there are multiple problems associated with fetal
alcohol syndrome and with parenting a child who suffers from fetal alcohol
syndrome, a variety of integrated services, including health, educational
and social services, are necessary to address those problems; and
Whereas, Existing services are limited in their effectiveness in
preventing and treating fetal alcohol syndrome because those services are
inadequate and there is a lack of coordination among the agencies that
provide those services; now, therefore,
THE PEOPLE OF THE STATE OF NEVADA, REPRESENTED IN
SENATE AND ASSEMBLY, DO ENACT AS FOLLOWS:
2-1
Section 1. Chapter 442 of NRS is hereby amended by adding thereto2-2
the provisions set forth as sections 2 to 21, inclusive, of this act.2-3
Secs. 2 and 3. (Deleted by amendment.)2-4
Sec. 4. As used in sections 4 to 21, inclusive, of this act, unless the2-5
context otherwise requires, "subcommittee" means the advisory2-6
subcommittee on fetal alcohol syndrome of the advisory board on2-7
maternal and child health.2-8
Sec. 5. 1. The advisory subcommittee on fetal alcohol syndrome of2-9
the advisory board on maternal and child health is hereby created. The2-10
subcommittee consists of 12 members, as follows:2-11
(a) The chairman of the advisory board shall appoint:2-12
(1) One member who:2-13
(I) Is a member of the advisory board and is a member of the2-14
state board of health; or2-15
(II) Is a member of the advisory board if no member of the2-16
advisory board is a member of the state board of health;2-17
(2) One member who is an employee of the division of child and2-18
family services;2-19
(3) One member who is a physician certified by the American2-20
Board of Obstetrics and Gynecology, or an equivalent organization;2-21
(4) One member who represents persons who operate2-22
community-based programs for the prevention or treatment of substance2-23
abuse;3-1
(5) One member who is a judge of a juvenile or family court in this3-2
state;3-3
(6) One member who represents a statewide organization in this3-4
state for the prevention of perinatal substance abuse; and3-5
(7) One member who represents a national organization that3-6
provides advocacy and representation for mentally retarded persons. To3-7
the extent possible, the member appointed must be nominated by a3-8
statewide organization in this state that is affiliated with such a national3-9
organization or, if no such statewide organization exists, by a majority of3-10
the local affiliates in this state of such a national organization.3-11
(b) The Nevada Hospital Association shall appoint one member who3-12
is an administrator of a hospital.3-13
(c) The Nevada Association of Health Plans shall appoint one3-14
member as its representative.3-15
(d) The dean of the University of Nevada School of Medicine shall3-16
appoint one member who is a member of the faculty of the department of3-17
pediatrics of the University of Nevada School of Medicine.3-18
(e) The chief of the bureau of alcohol and drug abuse of the3-19
rehabilitation division of the department of employment, training and3-20
rehabilitation shall appoint one member who is an employee of the3-21
bureau.3-22
(f) The superintendent of public instruction is an ex officio member of3-23
the subcommittee and may, if he wishes, designate a person to serve on3-24
the subcommittee in his place or to attend a meeting of the subcommittee3-25
in his place.3-26
2. If any of the appointing entities listed in subsection 1 cease to3-27
exist, the appointments required by subsection 1 must be made by the3-28
successor in interest of the entity or, if there is no successor in interest, by3-29
the chairman of the advisory board.3-30
3. The subcommittee may appoint one or more persons who have3-31
special expertise relating to fetal alcohol syndrome to assist the3-32
subcommittee in the performance of its duties.3-33
Sec. 6. 1. At the first meeting of the subcommittee and each year3-34
thereafter, the subcommittee shall elect a chairman and vice chairman3-35
from among its members. If a vacancy occurs in the chairmanship or3-36
vice chairmanship, the subcommittee shall elect a member to serve the3-37
remainder of the unexpired term.3-38
2. Except for the ex officio member, the term of office of each3-39
member of the subcommittee is 2 years. Each appointed member shall3-40
continue in office until his successor is appointed. An appointed member3-41
of the subcommittee may be reappointed. A vacancy in an appointed3-42
position must be filled by appointment for the unexpired term in the same3-43
manner as the original appointment.4-1
Sec. 7. 1. The subcommittee shall meet at the call of the chairman4-2
as often as required to perform its duties.4-3
2. A majority of the subcommittee constitutes a quorum for the4-4
transaction of business, and a majority of those members present at any4-5
meeting is sufficient for any action taken by the subcommittee.4-6
3. The health division shall provide necessary staff to assist the4-7
subcommittee in performing its duties.4-8
Sec. 8. 1. Each member of the subcommittee serves without4-9
compensation.4-10
2. While engaged in the business of the subcommittee, each member4-11
is entitled to receive the per diem allowance and travel expenses provided4-12
for state officers and employees generally. The per diem allowance and4-13
travel expenses of:4-14
(a) A member of the subcommittee who is an officer or employee of4-15
this state or a local government thereof must be paid by the state agency4-16
or the local government of this state that employs him; and4-17
(b) Any other member of the subcommittee must be paid by the health4-18
division.4-19
3. Each member of the subcommittee who is an officer or employee4-20
of this state or a local government must be relieved from the duties of his4-21
employment without loss of his regular compensation so that he may4-22
perform his duties on the subcommittee in the most timely manner4-23
practicable. A state agency or local government shall not require an4-24
officer or employee who is a member of the subcommittee to make up the4-25
time he is absent from work to fulfill his obligations as a member, and4-26
shall not require the member to take annual leave or compensatory time4-27
for the absence.4-28
Sec. 9. The advisory board and the subcommittee shall:4-29
1. Assist the health division in developing the program of public4-30
education that it is required to develop pursuant to section 10 of this act,4-31
including, without limitation, preparing and obtaining information4-32
relating to fetal alcohol syndrome.4-33
2. Assist the University of Nevada School of Medicine in reviewing,4-34
amending and distributing the guidelines it is required to develop4-35
pursuant to section 12 of this act.4-36
3. Determine, based in part upon the annual report submitted to the4-37
advisory board pursuant to section 18 of this act, the most effective4-38
methods of:4-39
(a) Preventing fetal alcohol syndrome; and4-40
(b) Collecting information relating to the incidence of fetal alcohol4-41
syndrome in this state.4-42
4. Develop and promote guidelines for the prevention of the4-43
consumption of alcohol by women during pregnancy. The guidelines5-1
must be developed with the goal of increasing the use of programs for the5-2
treatment of substance abuse by women before, during and after5-3
pregnancy.5-4
5. Develop with the assistance of the University of Nevada School of5-5
Medicine, model curricula relating to fetal alcohol syndrome that meet5-6
the continuing education requirements applicable to providers of health5-7
care and other services.5-8
6. Promote the availability of and distribute the model curricula5-9
developed pursuant to subsection 5.5-10
7. Review the statistical data reported to the health division relating5-11
to the incidence of fetal alcohol syndrome in this state.5-12
Sec. 10. 1. The health division shall develop and carry out a5-13
program of public education to increase public awareness about the5-14
dangers of fetal alcohol syndrome and other adverse effects on a fetus5-15
that may result from the consumption of alcohol during pregnancy. The5-16
program must include, without limitation:5-17
(a) Educational messages that are directed toward the general public5-18
and specific geographical areas and groups of persons in this state that5-19
are identified pursuant to subsection 1 of section 19 of this act as having5-20
women who are at a high risk of consuming alcohol during pregnancy.5-21
(b) Providing training materials to school personnel to assist them in5-22
identifying pupils who may be suffering from fetal alcohol syndrome and5-23
offering to provide the parents of those pupils with a referral for5-24
diagnostic services and treatment.5-25
(c) If a toll-free telephone service is otherwise provided by the health5-26
division, the use of that telephone service for providing information5-27
relating to programs for the treatment of substance abuse, providers of5-28
health care or other services and other available resources, and referrals5-29
to those programs, if appropriate. The telephone number must be5-30
disclosed in the educational messages provided pursuant to this section.5-31
2. The subcommittee shall periodically evaluate the program to5-32
determine its effectiveness.5-33
Sec. 11. 1. The health division may apply for and accept gifts,5-34
grants and contributions from any public or private source to carry out5-35
its duties pursuant to the provisions of sections 4 to 21, inclusive, of this5-36
act.5-37
2. The health division shall account separately for the money5-38
received from those gifts, grants or contributions. The administrator of5-39
the health division shall administer the account, and all claims against5-40
the account must be approved by the administrator before they are paid.5-41
3. The money in the account must be used only to carry out the5-42
provisions of sections 4 to 21, inclusive, of this act.6-1
4. The subcommittee may make recommendations to the6-2
administrator of the health division concerning the use of the money in6-3
the account. The administrator shall consider the recommendations of6-4
the subcommittee.6-5
Sec. 12. 1. The University of Nevada School of Medicine shall6-6
develop guidelines to assist a provider of health care or other services in6-7
identifying:6-8
(a) Pregnant women who are at a high risk of consuming alcohol6-9
during pregnancy; and6-10
(b) Children who are suffering from fetal alcohol syndrome.6-11
2. The subcommittee shall review, amend, adopt and distribute the6-12
guidelines developed by the University of Nevada School of Medicine6-13
pursuant to subsection 1.6-14
Sec. 12.5. If a pregnant woman is referred to the health division by a6-15
provider of health care or other services for information relating to6-16
programs for the prevention and treatment of fetal alcohol syndrome,6-17
any report relating to the referral or other associated documentation is6-18
confidential and must not be used in any criminal prosecution of the6-19
woman.6-20
Sec. 13. (Deleted by amendment.)6-21
Sec. 14. The division of child and family services of the department6-22
or a licensed child-placing agency shall inquire, during its initial contact6-23
with a natural parent of a child who is to be placed for adoption, about6-24
consumption of alcohol or substance abuse by the mother of the child6-25
during pregnancy. The information obtained from the inquiry must be:6-26
1. Included in the report provided to the adopting parents of the child6-27
pursuant to NRS 127.152; and6-28
2. Reported to the health division on a form prescribed by the health6-29
division. The report must not contain any identifying information and6-30
may be used only for statistical purposes.6-31
Sec. 15. 1. The division of child and family services of the6-32
department shall inquire, during its initial contact with a natural parent6-33
of a child who is to be placed in a family foster home, about consumption6-34
of alcohol or substance abuse by the mother of the child during6-35
pregnancy. The information obtained from the inquiry must be:6-36
(a) Provided to the provider of family foster care pursuant to NRS6-37
424.038; and6-38
(b) Reported to the health division on a form prescribed by the health6-39
division. The report must not contain any identifying information and6-40
may be used only for statistical purposes.6-41
2. As used in this section, "family foster home" has the meaning6-42
ascribed to it in NRS 424.013.7-1
Sec. 16. An agency which provides protective services shall inquire,7-2
during its initial contact with a natural parent of a child whom a court7-3
has determined must be kept in temporary or permanent custody, about7-4
consumption of alcohol or substance abuse by the mother of the child7-5
during pregnancy. The information obtained from the inquiry must be:7-6
1. Included in the report the agency is required to make pursuant to7-7
NRS 432B.540; and7-8
2. Reported to the health division on a form prescribed by the health7-9
division. The report must not contain any identifying information and7-10
may be used only for statistical purposes.7-11
Sec. 17. The health division shall adopt regulations necessary to7-12
carry out the provisions of sections 13 to 16, inclusive, of this act.7-13
Sec. 18. 1. The subcommittee shall identify the most effective7-14
methods of:7-15
(a) Preventing fetal alcohol syndrome; and7-16
(b) Collecting information relating to the incidence of fetal alcohol7-17
syndrome in this state.7-18
2. On or before a date specified by the advisory board, the7-19
subcommittee shall submit to the advisory board an annual report7-20
consisting of its findings.7-21
Sec. 19. The health division shall develop and maintain a system for7-22
monitoring fetal alcohol syndrome, that may include, without limitation,7-23
a method of:7-24
1. Identifying the geographical areas in this state in which women7-25
are at a high risk of consuming alcohol during pregnancy and groups of7-26
persons in this state that include such women;7-27
2. Identifying and evaluating deficiencies in existing systems for7-28
delivering perinatal care; and7-29
3. Collecting and analyzing data relating to systems for delivering7-30
perinatal care.7-31
Secs. 20 and 21. (Deleted by amendment.)7-32
Sec. 22. NRS 442.003 is hereby amended to read as follows: 442.003 As used in this chapter, unless the context requires otherwise:7-34
1. "Advisory board" means the advisory board on maternal and child7-35
health.7-36
2. "Department" means the department of human resources.7-37
3. "Director" means the director of the department of human resources.7-38
4. "Fetal alcohol syndrome" includes fetal alcohol effects.7-39
5. "Health division" means the health division of the department of7-40
human resources.8-1
6. "Provider of health care or other services" means:8-2
(a) A person who has been certified as a counselor or an8-3
administrator of an alcohol and drug abuse program pursuant to chapter8-4
458 of NRS;8-5
(b) A physician or a physician’s assistant who is licensed pursuant to8-6
chapter 630 of NRS and who practices in the area of obstetrics and8-7
gynecology, family practice, internal medicine, pediatrics or psychiatry;8-8
(c) A licensed nurse;8-9
(d) A licensed psychologist;8-10
(e) A licensed marriage and family therapist;8-11
(f) A licensed social worker; or8-12
(g) A holder of a certificate of registration as a pharmacist.8-13
Sec. 22.3. NRS 442.115 is hereby amended to read as follows: 442.115 1. The state board of health, upon the recommendation of8-15
the state health officer, shall adopt regulations governing examinations and8-16
tests required for the discovery in infants of preventable or inheritable8-17
disorders, including tests for the presence of sickle cell anemia.8-18
2. Any physician, midwife, nurse, maternity home or hospital of any8-19
nature attendant on or assisting in any way whatever any infant, or the8-20
mother of any infant, at childbirth shall make or cause to be made an8-21
examination of the infant, including standard tests, to the extent required by8-22
regulations of the state board of health as necessary for the discovery of8-23
conditions indicating such disorders.8-24
3. If the examination and tests reveal the existence of such conditions8-25
in an infant, the physician, midwife, nurse, maternity home or hospital8-26
attendant on or assisting at the birth of the infant shall immediately:8-27
(a) Report the condition to the local health officer of the county or city8-28
within which the infant or the mother of the infant resides, and the local8-29
health officer of the county or city in which the child is born; and8-30
(b) Discuss the condition with the parent, parents or other persons8-31
responsible for the care of the infant and inform them of the treatment8-32
necessary for the amelioration of the condition.8-33
4. An infant is exempt from examination and testing if either parent8-34
files a written objection with the person or institution responsible for8-35
making the examination or tests.8-36
Sec. 22.5. NRS 629.151 is hereby amended to read as follows: 629.151 It is unlawful to obtain any genetic information of a person8-38
without first obtaining the informed consent of the person or the person’s8-39
legal guardian pursuant to NRS 629.181, unless the information is8-40
obtained:8-41
1. By a federal, state, county or city law enforcement agency to8-42
establish the identity of a person or dead human body;9-1
2. To determine the parentage or identity of a person pursuant to NRS9-2
56.020;9-3
3. To determine the paternity of a person pursuant to NRS 126.121 or9-4
425.384;9-5
4. For use in a study where the identities of the persons from whom the9-6
genetic information is obtained are not disclosed to the person conducting9-7
the study;9-8
5. To determine the presence of certain preventable or inheritable9-9
disorders in an infant pursuant to NRS 442.115 or a provision of federal9-10
law; or9-11
6. Pursuant to an order of a court of competent jurisdiction.9-12
Sec. 22.7. NRS 629.171 is hereby amended to read as follows: 629.171 It is unlawful to disclose or to compel a person to disclose the9-14
identity of a person who was the subject of a genetic test or to disclose9-15
genetic information of that person in a manner that allows identification of9-16
the person, without first obtaining the informed consent of that person or9-17
his legal guardian pursuant to NRS 629.181, unless the information is9-18
disclosed:9-19
1. To conduct a criminal investigation, an investigation concerning the9-20
death of a person , or a criminal or juvenile proceeding;9-21
2. To determine the parentage or identity of a person pursuant to NRS9-22
56.020;9-23
3. To determine the paternity of a person pursuant to NRS 126.121 or9-24
425.384;9-25
4. Pursuant to an order of a court of competent jurisdiction;9-26
5. By a physician and is the genetic information of a deceased person9-27
that will assist in the medical diagnosis of persons related to the deceased9-28
person by blood;9-29
6. To a federal, state, county or city law enforcement agency to9-30
establish the identity of a person or dead human body;9-31
7. To determine the presence of certain9-32
inheritable disorders in an infant pursuant to NRS 442.115 or a provision9-33
of federal law; or9-34
8. By an agency of criminal justice pursuant to NRS 179A.075.9-35
Secs. 23-38. (Deleted by amendment.)9-36
Sec. 38.5. The provisions of this act must be carried out within the9-37
limits of available appropriations and other resources.9-38
Sec. 39. 1. The appointment of the members to the advisory9-39
subcommittee on fetal alcohol syndrome of the advisory board on maternal9-40
and child health created pursuant to section 5 of this act must be made as9-41
soon as practicable after October 1, 1999.9-42
2. The terms of the initial members of the subcommittee expire on9-43
October 1, 2001.10-1
Sec. 40. 1. This section and sections 1, 3 and 17 of this act become10-2
effective upon passage and approval.10-3
2. Sections 2, 4 to 16, inclusive, and 18 to 39, inclusive, of this act10-4
become effective on October 1, 1999.~